At PoTS UK, we recognise that many people living with PoTS experience challenges within healthcare settings due to limited awareness and understanding of the condition and how it affects daily life.
This can unfortunately lead to:
We also recognise that the need to repeatedly explain the condition and care requirements can be physically and mentally draining.
That is why we are introducing the new PoTS Passport, a practical support document designed to help communicate your needs clearly within healthcare settings.
Download your copy here: https://www.potsuk.org/managingpots/pots-passport/
(This page also answers some frequently asked questions.)
Thank you to Sophie for explaining more about the passport.
We want your feedback
We are currently piloting this resource and will continue to adapt and improve it based on feedback to ensure it is as helpful as possible.
If you have any feedback on the PoTS Passport, we would love to hear from you:
👉 Complete our survey: https://www.surveymonkey.com/r/9PD7YXJ