PoTS UK supports and educates patients, family, friends and healthcare professionals within the United Kingdom about this under-recognised and commonly misdiagnosed condition by sharing up-to-date evidence and resources.
- We work with healthcare professionals and other charities in the UK and abroad and advocate for our members by seeking better NHS services, more research, and targeted treatments for people with PoTS.
- We aim to connect patients in a safe environment to empower them to self-manage their condition and reduce isolation.
- We produce evidence-based educational content for healthcare professionals which will improve awareness of PoTS, diagnosis and management, and improve health services for patients.
PoTS UK began as a Facebook group in 2010, and until 2015 all the work was undertaken by three volunteer trustees. Since then, we have grown into an internationally recognised charity. Our charity supports all ages, genders and ethnicities. Read more about our history
To provide accessible evidence, informed support, education and awareness for our growing community.
To optimise the health and quality of life of everyone impacted by PoTS.
We are committed to supporting the PoTS community by:
- Ensuring PoTS is universally known.
- Promoting fair and equitable access to healthcare.
- Facilitating ongoing advancement of our understanding of the condition and its management of PoTS.
- Providing trusted and evidenced-informed resources.
- Challenging ourselves to be more inclusive, sustainable, and connected.
- Leading the change for a compassionate and open mindset.
- Collaborating with others who share our ambitions.