Stories about PoTS
Some of our members have shared their experience of PoTS.
Their stories describe how their PoTS began and their road to a diagnosis, and we hope that sharing them will help others to find the best way forward when confronted with the difficulties that PoTS presents.
Lorem ipsum dolor sit amet, consectetur adipiscing elit. Donec at lacinia nulla. Fusce ut placerat ipsum. Etiam viverra, elit vel viverra tempor,...
My name is Jaime, I’m 29 years old from Atlantic Canada. May 18th, 2022 is the day I got COVID, and the day my life changed. Before this, I worked...
My name is Summer and I am 28 years old. It has been almost 1 year since my PoTSfelt as though it arrived overnight. I had a pre-syncope on my way to ...
Postural Tachycardia Syndrome (PoTS) was first suggested (along with MCAS) by my GP in 2024 following a trip to A&E with an elevated heart rate,...
Hello, my name is Amber, and I am 21 soon to be 22. I’m from Canada, I developed PoTS at 11 years old but was misdiagnosed numerous times. It...
My name is Sarah. I am 32 years old, and was diagnosed with PoTS at 30 years old. About 3 months after having a covid infection, I became very sick...
Hi I’m Natalie. I’ve been showing symptoms of PoTS on and off since my teenage years, going dizzy on standing, feeling faint and having...
My symptoms first appeared at 16. I remember this as I experienced a scary period of prolonged tachycardia, that led to my first hospital visit....
My name is Annabelle, and I have Hyperadrenergic PoTS and Inappropriate Sinus Tachycardia (IST). In March 2025, I began feeling constantly dizzy,...
My name is Holly, I’m 26 years old. I developed PoTS in 2023, not long after having my third Covid jab, it all started out of nowhere. I was...
My name is Dillan, I am 17 years old living with PoTS. While there is no way for me to confirm it, there is no doubt in my mind that I got PoTS from...
Natasha’s Trek to Everest Base Camp for PoTS UK In November, Natasha embarked on an incredible journey to Everest Base Camp, fundraising for PoTS...