Share your story!
Our stories continue to be a very popular section of our website and we would love to share more.
We appreciate that this takes a lot of courage and thought, and for some, the time isn’t right.
Please only share what you feel happy to – everyone’s story is different, but all are important and can help others.
Additionally, every story shared goes towards raising greater awareness, and we know this is something we all want to achieve.
We particularly welcome story submissions from people from ethnic minorities and males whose voices are currently under-represented in the PoTS community.
Not sure where to start? Here are some suggestions to get you started
These questions are only a guide and may be helpful if you are unsure where to start in
telling your story. Please keep stories under 750 words if possible.
- Name
- Age
- When did you develop PoTS?
- How long did it take you to be diagnosed?
- How has PoTS affected your life?
- What is the biggest challenge?
- What lifestyle changes have worked well for you?
- What medication have you tried? What has worked and what hasn’t?
- Do you have any wise words/messages of hope for those who may be reading this and looking for guidance?
- What would you like to say to someone who knows nothing about PoTS?
- What is your biggest hope in terms of PoTS and raising awareness?
When you have finished writing it, please send it to us at stories@potsuk.org along with your name, and one or more photo(s) of you to illustrate the story. You can remain anonymous.
Before we publish your story, we need you to complete this form, giving consent for PoTS UK to share it on our website and social media channels until we decide to remove it or you let us know you would like it removed (which you can do at any time).