PoTS UK – Online Peer Support Groups
We look forward to seeing you at our Online Peer Support Groups.
These groups are the perfect opportunity to meet with your peers and talk to those who understand what you are going through. They are run by volunteers who either have PoTS or are affected by PoTS.
There a plenty of groups that are open to all (18+) but we also run additional sessions including groups for 13-17 years, men only and parents and carers.
Upcoming groups:
W/C 22nd June 2026
- PoTS UK Online Peer Support Group Open to all 18+ (4th Monday of the Month) – Monday 22nd June
- 13-17 year olds – Monday 22nd June – 7pm
- PoTS UK Online Peer Support Group Open to all 18+ (4th Tuesday of the Month) – Tuesday 23rd June – 7pm
- Newly Diagnosed/Awaiting Diagnosis Group 2 – Wednesday 24th June – 7pm
Please click on the links below to register:
PoTS Online Peer Support Groups – open to all over 18
A friendly online space for adults (18+) living with PoTS to connect, share experiences, and support one another. Whether you’re newly diagnosed or have been living with PoTS for years, you’re welcome to join us.
PoTS UK Online Peer Support Group (4th Monday of the Month) – Monday 22nd June
PoTS UK Online Peer Support Group (4th Tuesday of the Month) – Tuesday 23rd June – 7pm
PoTS UK Online Peer Support Group (1st Wednesday of the Month) – Wednesday 1st July – 7pm
PoTS UK Online Peer Support Group – Wednesday 8th July – 7pm
PoTS UK Online Peer Support Group (3rd Thursday of the Month) Thursday 16th July – 7pm
PoTS UK Online Peer Support Group (4th Monday of the Month) – Monday 27th July – 7pm
PoTS UK Online Peer Support Group (4th Tuesday of the Month) – Tuesday 28th July – 7pm
PoTS UK Online Peer Support Group (1st Wednesday of the Month) – Wednesday 5th August – 7pm
PoTS UK Online Peer Support Group (2nd Wednesday of the Month) – Wednesday 12th August – 7pm
PoTS UK Online Peer Support Group (3rd Thursday of the Month) – Thursday 20th August – 7pm
PoTS UK Online Peer Support Group (4th Monday of the Month) – Monday 24th August – 7pm
PoTS UK Online Peer Support Group (4th Tuesday of the Month) – Tuesday 25th August – 7pm
Parents and Carers
A welcoming online space for parents and carers of people with PoTS to connect, share experiences, and support one another. Topics often discussed include education, university, friendships, benefits, healthcare appointments, daily challenges, and the impact PoTS can have on family life.
13 -17 Year Olds
A friendly online space for young people aged 13 – 17 living with PoTS to connect with others who understand what they are going through. Many participants enjoy using the chat box to join in conversations, share experiences, and support one another. Topics often include managing school, socialising, going out with friends, dealing with symptoms, and the day-to-day challenges of living with PoTS. Whether you want to chat, listen, or simply know you’re not alone, you’re welcome to join us.
IMPORTANT – If you are under 16, we must receive consent from your parent or guardian confirming they are happy for you to attend.
NOTE TO PARENTS/GUARDIANS: To help create a safe space where young people can speak openly, we ask that parents and guardians do not participate in discussions on their child’s behalf. You are welcome to attend with your child if needed, but please remain off camera and allow the young people to lead the conversation. Thank you for helping us maintain a supportive peer environment.
13-17 year olds – Monday 22nd June – 7pm
Newly Diagnosed/Awaiting Diagnosis
A supportive online space for adults who are newly diagnosed with PoTS or currently awaiting diagnosis. Connect with others who understand the uncertainty and challenges that can come with this stage of the journey. Topics often include navigating appointments, understanding symptoms, managing daily life, accessing support, and adjusting to a potential diagnosis. Whether you have questions, want to share your experiences, or simply listen, you are welcome to join us.
Newly Diagnosed/Awaiting Diagnosis Group 2 – Wednesday 24th June – 7pm
Newly Diagnosed/Awaiting Diagnosis – Tuesday 7th July – 7pm
Newly Diagnosed/Awaiting Diagnosis Group 2 – Wednesday 22nd July – 7pm
Newly Diagnosed/Awaiting Diagnosis – Tuesday 4th August – 7pm
Newly Diagnosed/Awaiting Diagnosis Group 2 – Wednesday 26th August – 7pm
Afternoon Session
A relaxed and friendly online group for adults living with PoTS who prefer to connect during the daytime. Join others to share experiences, discuss the challenges of living with PoTS, exchange practical tips, and offer mutual support in a welcoming environment.
Afternoon Session – Tuesday 7th July – 1pm
Afternoon Session – Wednesday 15th July – 1pm
Men Only
A welcoming online space for men living with PoTS to connect with others who understand the unique challenges of living with the condition. Share experiences, discuss the impact of PoTS on work, family life, relationships, mental wellbeing, and daily activities, and gain support from peers in a friendly and understanding environment.
Northern Ireland/Scotland/Wales
A friendly online space for people living with PoTS in Northern Ireland, Scotland, and Wales to connect with others in their nation. Share experiences, discuss local healthcare services, appointments, benefits, education, work, and the day-to-day challenges of living with PoTS.
Northern Ireland/Scotland/Wales – Thursday 9th July – 7pm
Northern Ireland/Scotland/Wales – Thursday 13th August – 7pm
Topic Groups
These special peer support groups focus on topics requested by our community. They provide an opportunity to discuss specific aspects of living with PoTS in more detail, connect with others who share similar experiences, and learn from peer discussions. Topics vary throughout the year based on member feedback, helping us provide support on the issues that matter most to you.
Parenting with PoTS – Tuesday 30th June – 7pm
PoTS UK Online Peer Support Group for the Neurodivergent Community – Monday 6th July – 7pm
If your circumstances change and you can no longer attend, please let us know as soon as possible so we can allocate your space to someone else: peersupportgroups@potsuk.org.
We hope that by connecting with your peers, you will be able to share experiences, offer support, and learn from one another.
PLEASE CLICK HERE TO READ GUIDELINES BEFORE ATTENDING THE SESSION
Most importantly, the only person you should seek and accept medical advice from is your own healthcare professional who knows your medical history. It is essential that you do not give one another medical advice.
These groups are the perfect opportunity to share experiences and you are welcome to share what has worked well for you. We must however appreciate how different we all are and what has worked for one may not be suitable for another.
Our volunteers may stop a conversation if it appears medical advice is being given.
If you have any questions, please email: peersupportgroups@potsuk.org
We can’t wait to welcome you all to the groups and to get to know you better.
