Contact Us and Commonly Asked Questions
We have various email addresses in order for your query to reach the appropriate person as quickly as possible.
Depending on your enquiry, please email ONE of the following:
- support@potsuk.org – if you have a query related to PoTS and need help or guidance (please refer to our ‘Commonly asked questions’ below before emailing to see if your query is answered here)
- fundraising@potsuk.org – for any fundraising enquiries
- stories@potsuk.org – if you have photos/stories you would like to share with us and are happy for them to be added to our website/social media page
- shop@potsuk.org – for any enquiries regarding merchandise
- peersupportgroups@potsuk.org – if you have any questions or suggestions about our peer support groups or need to let us know that you are unable to attend a group that you registered for
- enquiries@potsuk.org – for all other enquiries
PoTS UK is mainly run by volunteers who support the charity in their free time. Please be patient – it may take up to a week for us to respond to your enquiries
- Please do not contact us about promoting your business
- Unfortunately as a small charity we are unable to to advocate for individuals, write to your healthcare professionals or provide funding to individuals
Commonly asked questions:
Q: I think I may have PoTS, what do I do?
We suggest you take our GP Guide to your GP. Describe your symptoms and ask them if they will do the “Stand test”. You may have to book another appointment for this. Your GP can decide whether further investigations are necessary and refer you to a specialist if needed.
Q: How to I find a clinic in my area?
Our Clinics section offers a list of doctors who have some knowledge and experience of managing PoTS and agreed to be listed here. Some doctors offer private consultations. To obtain details, either search on the internet or telephone their secretary for more information.
Q: What should I do if my GP will not refer me?
It may be that there is a good reason. Ask your doctor for an explanation. If you remain unsatisfied, you can ask to see another doctor for a second opinion.
Q: How do I find someone to talk to?
We are unable to offer telephone advice, but will aim to reply to any email enquiry regarding PoTS within one week (see email addresses above). If you would like to contact others with PoTS, who understand what you are going through, then please register for one of our Online Peer Support Groups.
Q: I would like to become a subscriber to PoTS UK
Please complete the subscriber form.
Q: Where can I find explanations of common PoTS related acronyms and abbreviations?
We’ve created an Acronym Guide to help you understand some of the most commonly used abbreviations and medical terms related to PoTS and associated conditions. You can browse the guide here.
If you have any other enquiries, do not hesitate to contact us at enquiries@potsuk.org.