Simply standing up can be a challenge for affected people as their body is unable to adjust to gravity.
PoTS is due to an abnormal response by the autonomic (automatic) nervous system and is characterised by orthostatic intolerance (the development of symptoms when upright that are mostly relieved by lying down).
Symptoms include palpitations, lightheadedness, fatigue, sweating, nausea, fainting and headaches, and are associated with a persistent increase in heart rate from the lying to upright position.
We’re here to offer help & support
Some of our members have shared their experience of PoTS. Their stories describe how their PoTs began and their road to a diagnosis, and we hope that sharing them will help others to find the best way forward when confronted with the difficulties that PoTS presents.
My name is Jaime, I’m 29 years old from Atlantic Canada. May 18th, 2022 is the day I got COVID, and the day my life changed. Before this, I worked...
My name is Summer and I am 28 years old. It has been almost 1 year since my PoTSfelt as though it arrived overnight. I had a pre-syncope on my way to ...
Postural Tachycardia Syndrome (PoTS) was first suggested (along with MCAS) by my GP in 2024 following a trip to A&E with an elevated heart rate,...
Hello, my name is Amber, and I am 21 soon to be 22. I’m from Canada, I developed PoTS at 11 years old but was misdiagnosed numerous times. It...
This is our chance to make sure PoTS is heard in Parliament – but it won’t happen without YOU. 💜 #PoTS #FYP #InvisibleIllness #Westminster #ActNow
Today we are sharing the @itvnews interview with @Emkin as she talks about her experience of living with PoTS. We hope to share as many regions as possible to keep raising awareness 💜 #ITVNewsCentralEast #PoTS #ChronicIllness #DisabilityAwareness #FYP
Myth vs Reality: Living with PoTS is not “just feeling faint.” It’s a serious, debilitating condition. Please share to raise awareness, support our community, and help us be heard. (Tap the screen to pause and read at your own pace) #PoTS #MythVsReality #ChronicIllness #DisabilityAwareness ...#HealthAwareness
#PoTSAwarenessMonth #PoTS #YogaForPoTS #Breathwork #RootedAndRegulated
We want to share as many recordings as we can from the @itvnews reports the other night. The more we share the more awareness we raise across the country. Thank you @lottsonlife for sharing your PoTS experience with #ITVNewsWestCountry 💜 #PoTS #RaisingAwareness #FYP #ChronicIllness
‘Your health is your main concern, not rowing a boat’ Thank you @Hannah Scott for raising awareness of PoTS when talking to @BBC Sport #PoTS #Rowing #Olympics #RaisingAwareness #FYP
Thank you @Kez x for taking the time to talk to @itvnews and share your PoTS experience. #RaisingAwareness #PoTSAwareness #ITVMeridian #FYP #posturaltachycardiasyndrome
It was great to see our lovely PoTS UK volunteer, Sophie and General Manager, Jo talking about PoTS on ITV Central news this evening. It was really good to have the opportunity to raise awareness and for Sophie to share her experience of living with PoTS. 💜 @itvnews #RaisingAwareness ...#PoTSAwareness #ITVMeridian #FYP #posturaltachycardiasyndrome
#PoTS #PoTSAwareness #ITVMeridian #PoTSCommunity #FYP @itvnews @ITVX
